Learning from Apraxia

Happy Monday, friends!

I am lucky enough to be over on Columbia Mom sharing about navigating Brooks’ Apraxia and what I’ve learned over the past few years. You can read the whole post here.

Even though most of you will never really need to know the ins and outs of Apraxia, I think you’ll still be able to take something away from our experience. While I have learned a lot about speech development, I’ve learned even more about advocating for my children and finding the right support system.

Most importantly, I’m learning to let go of what I can’t control and concentrate on the here and now. It’s not always easy, and I’m definitely a work in progress, but just like with Brooks’ speech, I’m trying to take things one day at a time.

Living Life Line By Line

Third grade is no joke. It’s the real deal, where the rubber meets the road and lessons start to get tough. Third grade means multiplication tables and cursive writing, and for Reeves, it has meant the dreaded Reader’s Notebook.

In the simplest terms, Reader’s Notebook requires Reeves to read a few chapters in a book and then write a full page entry about what he read.

What we figured out early on was that Reeves could tell us every single thing that happened in the story. He could make predictions and connections and all the other English-y things teachers look for, but getting all that down on paper was a completely different story. When he saw that blank sheet of paper staring up at him, he froze. It was paralyzing for him to think he had to fill it up.

A counselor taught us a strategy to help Reeves. She suggested he use a blank sheet of typing paper to cover up everything but the first line of the notebook paper. Once he’s written on that first line, he moves the typing paper down so he can see the second line and fills it up. Reeves continues this revealing process line by line until he has, indeed, written his entry on the entire sheet of paper.

This new method works like a charm. Now that Reeves only has one little space to focus on instead of a whole sheet of paper, his anxiety disappears. He knows he can handle one line at a time.

Lately, I find myself thinking of this strategy a lot because I know exactly what Reeves has been feeling.

Three years ago, Brooks was diagnosed with Apraxia of Speech, and even though I still can’t tell you exactly what it is, I can tell you he struggles with communication, and that struggle often leads to frustration and aggression because he knows exactly what he’s trying to say, but he has trouble getting the words out.

The other thing I know about Apraxia is that there’s no set timeline for treatment. Some kids work through their speech difficulties in elementary school. Others overcome them in middle school. And still others deal with them their entire lives.

Not having an end in sight is terrifying.

When I look too far ahead, I feel just like Reeves does when he stares at a blank sheet of paper. It just seems so vast, and I don’t have any idea how the story is going to go.

I start filling in that blank page of Brooks’ future with all sorts of worries—Will he need to go to a special school? Will he go to college? Hold down a job? Get married? I mean, you name it, I’ve worried about it.

It’s overwhelming and daunting to have so many unknowns.

I’ve worked really hard since January to change my focus, to use my own cover sheet to zero-in on the week ahead and not think about years from now. I remind myself to celebrate the growth we see at therapy each session. I remember to be thankful for the tremendous therapists we have worked with. I try to take joy in the crazy words Brooks actually can say, like, oddly enough, the name of every dinosaur that ever roamed the earth.

Does it always work? Nope—absolutely not. But I’m giving myself grace and focusing on progress over perfection for myself and for Brooks. What I have to remember is today is doable. One day at a time. One word at a time. One prayer at a time.

I don’t know what challenge you’re facing, friend. It could be related to your work, your health, your relationships, or your children. But I do know that God doesn’t want us to think too far ahead. He wants us to trust that He will provide what we need for today and that it will be enough.

The Message version of Matthew 6:34 says, “Give your entire attention to what God is doing right now, and don’t get worked up about what may or may not happen tomorrow. God will help you deal with whatever hard things come up when the time comes.”

It’s not easy by any means, but when life gets tough, let’s try to take it line by line, remembering that God is the author of our stories, and He has promised to make them good.

Keep On Keepin’ On

Do you ever stop and ask yourself, “Is anyone even listening to me?”

Please tell me you do.

As a teacher and as a mom, I ask myself this question at least once a day.

It usually involves a situation like this:

“Hey, Bud, didn’t I just ask you to sit down?”

“Yes, ma’am.”

“Then why are you still wandering around my room?”

Or a little something like this:

“Didn’t I just tell you to get off your brother?”

“Yes, ma’am.”

“Then why are you sitting on his head?”

In times like these, I wonder if I’ve lapsed into Chinese without knowing it. Or maybe Spanish. Or maybe the words got stuck inside my head and never even made it out of my mouth to begin with. Maybe I just imagined speaking out loud because surely, surely, my sweet students and children wouldn’t disregard my directions so completely.

I often get so frustrated, I want to throw in the towel and stop asking anyone to do anything. What’s the point if everyone is just going to ignore me, right?

Wrong.

A few years ago, a friend shared her family’s tradition of praying in the car on the way to school. She made it seem like a treasured, idyllic way to start the day. It made good sense to me since everybody would be fresh and (trapped) in one place, so I thought we’d give it a try. I pictured us like the von Trapps, matching clothes and smiling faces, enjoying a special time of bonding and togetherness.

It was not.

Jackson, my people-pleasing first born, was more than happy to join in the prayers, but Reeves? Reeves was not interested in the least. In fact, instead of praying, he barked.

Like a dog.

The entire time.

Needless to say, that wasn’t quite what I had in mind. I felt like an epic failure. I mean, seriously, what kind of mom can’t get her five year old to pray? My only consolation to this disheartening turn of events was that if God could understand the Holy Spirit’s groans in Romans 8:26, maybe He could understand Reeves’ barks too.

His barking continued for a few days, until finally, at my wits end, I told Reeves he didn’t have to pray, but he did have to be respectfully quiet.

That helped–a little. Instead of barking, Reeves switched to a low growl for a few days, and after that, he just sat in silence, staring out the window while Jackson and I said our prayers. I honestly didn’t even think he was listening to us.

So imagine my surprise one morning a few months later when we were almost to school, and I heard Reeves say, “Mom, we need to pray.”

I was so shocked, I almost ran off the road. The child who I thought wasn’t paying me any attention had actually been internalizing everything we were doing . . . and he wanted to keep doing it. I was blown away.

These days, if we make it to the baseball field without praying, Reeves is the one who reminds us we need to get started since we’re almost to school. His prayers are simple and heartfelt, and in those moments, I’m thankful I didn’t throw in the towel. In those moments, I’m reminded of 2 Chronicles 15:7, when the Spirit of God tells Asa: But as for you, be strong and do not give up, for your work will be rewarded.

That’s the tricky thing about parenting . . . and teaching . . . and living life in general, really—we never know what people are listening to, what they’re picking up on, what words are making their way from the ears to the heart.

So let this be a word of encouragement for you today. Keep on keepin’ on, friend. Keep saying those prayers, keep speaking those truths, keep sowing those seeds. After all, we never know what will end up taking root and changing someone’s heart.